Waiting for the Start of My New Treatment

Tuesday 26th to Sunday 31st August 2008

I seem to have recovered some energy overnight and on Tuesday morning I am off to Wood Green to see a couple of people on my work project. Before I go I check my emails to find that I have a very prompt reply from Nick Herbert MP. I don’t know where he is taking his holiday, but I received his email at 11.30pm last night!! He is writing to the Chief Executive of my PCT about my case. Well, I could not ask for more! Later in the day I receive an acknowledgement from the convenor of the PIN panel as well. The panel will hear my appeal on Friday 12th September – fingers crossed for a successful outcome!

I work from home on Wednesday and Thursday and then go back up to Tottenham on Friday, followed by an afternoon at the office. By evening I am feeling really knackered and reckon I am probably anaemic. On Saturday Tina has planned a shopping day with Linda Bell. I walk up the road to get my newspaper and find my legs are heavy and I am out of breath. I call the haematology ward and Jim Rodgers gives me a lift for a blood test. It is confirmed that I need a couple of units of blood and I am booked in for Monday afternoon. We go to Steve and Sue’s for a barbecue supper. I keep to half a beer and a glass of wine as I have been getting headaches with more than a glass! It is Matthew’s birthday on Sunday, so we join him, Charrise and the girls for lunch in Ferring. I have to go via the hospital as I need to have a blood sample taken for a cross-match. When we get home I have a good hour’s sleep.